Register Today!

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Join Us as we educate our Alabama state legislators on what it is like to live with a rare disease in the state of Alabama. We will discuss with legislators what resources we have, what resources we need, and where we can work together to take action.

The day will start at 8 am with an advocacy training to learn how best to communicate with state legislators and advocate for specific policy issues.

From 9 am - 3 pm, we will have an open house with legislators and specific one on one meetings.

The event is FREE to attend. Lunch will be provided!

Transportation to Montgomery and parking around the state house is on your own.

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